Share Your Story

Family Experiences Navigating Support Systems for Neurodivergent Children

The Hayden Rose Foundation is gathering stories from families navigating developmental services, therapies, and support systems. Our goal is to better understand the real barriers families face—so we can share resources, advocate for improvements, and support others starting this journey. Participation is completely voluntary. Responses may be used anonymously to inform articles, research, and advocacy efforts that support families.

"(Answer requested)" indicates required fields

Name(Answer requested)
Does your child have a diagnosis?(Answer requested)
Check all that apply.
What insurance does your child currently have?(Answer requested)
Check all that apply.
Who did you first speak to about your concerns?(Answer requested)

Did you feel heard when you first raised your concerns?(Answer requested)
After your child was evaluated, did anyone clearly explain the next steps for services or support?(Answer requested)
Which systems have you had to navigate?(Answer requested)
Did you receive conflicting information from different agencies?(Answer requested)
What were the biggest barriers you encountered(Answer requested)
Select between 1 and 3 choices.
Did anyone explain how the different services and systems work together?(Answer requested)
If you had to figure it out yourself, where did you get most of your information?(Answer requested)

Has caring for your child affected your ability to work or maintain employment?(Answer requested)
What kind of resource would have helped your family the most when you first started this journey?(Answer requested)

Would you be open to sharing more about your experience in a future interview?(Answer requested)

Back
Home